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Boston music student’s dream put at risk by rare tumor

Defying the Odds: How a Berklee Musician Saved His Hearing

Anthony Johnson's passion for music has always been evident, from his ability to distinguish every chord and instrument as he composes scores to his unwavering dedication to his craft. However, his journey took an unexpected turn when a rare tumor threatened to take away the very thing that defined him – his hearing.

Unlocking the Melody of Resilience

A Musical Prodigy's Unexpected Obstacle

Anthony Johnson's journey to Berklee College of Music was a dream come true, but his sophomore year brought an unexpected challenge. He began experiencing debilitating tinnitus, a constant ringing in his ears that made it difficult for him to sleep and function. Seeking medical attention, Johnson underwent an MRI that revealed a rare, benign tumor known as an acoustic neuroma in his right ear. The news was devastating, as the initial surgery to remove the tumor found it was so intertwined with the nerve that controls his facial muscles that its removal would cause more than just hearing damage.

A Team Unwilling to Accept Defeat

Tufts Medical Center's neurotologist, Dr. Kathryn Noonan, and neurosurgeon, Dr. Carl Heilman, had been with Johnson from the start, and they understood the gravity of the situation. As a Berklee student and a brilliant musician, Johnson's hearing was not just his passion, but his livelihood. Noonan and Heilman refused to accept the grim prognosis they received from colleagues across the country, who unanimously declared that Johnson would lose his hearing.

A Daring Surgical Approach

Determined to defy the odds, Noonan and Heilman decided to take a second, more daring approach. They went in behind Johnson's ear, hoping to find a better angle to work with. "From this angle, we had a nice plane or a nice edge to work with and gradually roll the tumor off both the facial nerve and the hearing nerve," Heilman explained. It was a high-stakes gamble, but one they were willing to take to save Johnson's hearing.

A Moment of Triumph

As Johnson emerged from the anesthesia, he was greeted with a sound he had feared he might never hear again – the ambient noise of the hospital room. "I just remember hearing just the ambient noise of the room, the HVAC system, the people talking. I could hear something on wheels being rolled. I used up all the energy I had and was like, 'I can hear!'" he recounted, the relief and joy palpable in his words.

A Triumphant Return to the Melody

Back at Tufts Medical Center, Johnson and the team received the best news they could have hoped for – his hearing had been fully restored, and he was now on the fast track to realizing his dreams of composing music for movies. "There's nothing holding me back now," Johnson said, his voice brimming with optimism. "Now it's a possibility to live out my dream. I just want the chance to be able to live out that possibility."The journey that Anthony Johnson faced was one filled with uncertainty and the threat of losing the very thing that defined him. But through the unwavering determination of his medical team and his own resilience, he emerged victorious, his passion for music reignited and his dreams within reach. This story serves as a testament to the power of perseverance and the transformative impact of medical innovation, reminding us that even the most daunting obstacles can be overcome when we refuse to accept defeat.